Helping Canadian Dermatologists better manage Hidradenitis Suppurativa

a guide to living with hs provided by the canadian hidradenitis suppurativa foundation.

The goal of this book is to help individuals with hidradenitis suppurativa (HS) to learn more about HS and how to effectively manage this condition. This book is also designed for family members and friends of HS patients, as well as generalist healthcare practitioners who would like to increase their understanding of HS and the challenges associated with this condition.

the logo for the 99th cda annual conference featuring hidradénite suppurée.

Note: Deadline for application as of March 15, 2024

  • Communicate the latest HS management techniques

  • Create HS research opportunities and education for Canadian Dermatologists and mentorship for residents

  • Establish cross-specialty dialogue to improve HS patient outcomes

  • Collaborate with international HS foundations to optimize research, education and patient care
a close up of a pink and purple tissue, supporting the canadian hidradenitis suppurativa foundation.

What Is Hidradenitis Suppurativa (HS)?

Hidradenitis suppurativa (HS) is a painful, long-term skin condition that causes abscesses and scarring on the skin. The exact cause of hidradenitis suppurativa is unknown, but it occurs near hair follicles where there are sweat glands, usually around the groin, bottom, breasts and armpits.

THE PAIN IS TO THE CORE, TO THE POINT WHERE IT IS DEBILITATING. AS A RESULT, I LEARNT TO LANCE MY LESIONS.
WE REALLY NEED MORE DISEASE AWARENESS AND SUPPORT.

Joshua
A PERSON LIVING WITH HS, SHARED

Higher Standards for HS Surgical Training Initiative

To provide a national, hands-on, Canadian HS Foundation (CHSF) supported program for Canadian dermatologists & dermatology nurses to refine their medical and surgical practices to reflect the International Gold Standard of in hidradenitis suppurativa care.

A successful inaugural workshop in Alberta will set the stage for a Canadian tour and an annual program. This would be the first program of its kind in any disease state in Canada. Our vision is to share our experience internationally in the future through publications & at congresses.

With the participants’ permission, a list of dermatologists certified through this program would be posted on the CHSF website to guide patients in finding a certified HS dermatologist. This would help shorten the time to diagnosis & proper targeted treatment, reduce disease progression & scarring, decrease presentations to emergency & urgent care facilities, and avoid referrals to incorrect specialties.

Since this workshop alone would not provide enough experience to become certified in deroofing, participants can pursue self-arranged sponsorship for one-on-one training with established Deroofing Surgeons as part two of this program, Higher Standards for HS Deroofing if interested.

Timeline & Venue

SEPTEMBER 6TH EVENING & FULL DAY 7TH, 2024

Funding to be secured by end of Q1
Itinerary, venue/meals & invitations to participants to be confirmed by end of Q2

Symmetry Dermatology Clinic: 3490 Allan Dr SW Edmonton, AB T6W 3G9

Hotel: Holiday Inn Windermere

September 6th Evening:

06:00 – 06:30Welcome Registration & Reception
06:30 – 08:30Welcome Dinner

September 7th Full Day:

08:15 – 09:00Breakfast & Registration (If Not Already Registered)
09:00 – 09:15Welcome Remarks & Introductions
09:15 – 09:30HS Disease Pathophysiology Update
09:30 – 10:00Medical Management, including General Measures
10:00 – 10:30Upcoming Medical Treatment Landscape
10:30 – 10:45Break
10:45 – 11:15Deroofing Basics & Complications
11:15 – 11:45Practical Clinic Considerations for Implementing Deroofing
11:45 – 12:00Importance of Combination Treatment & Closing Remarks
12:00 – 12:45Lunch
12:45 – 01:00Walk Over to Symmetry
01:00 – 02:151st Set of Deroofings/Laser Hair Removal Station
02:15 – 03:302nd Set of Deroofings/Laser Hair Removal Station
03:30 – 04:00Snacks & Debriefing

Note: Attendance is by invite only.

We would like to thank our sponsors Novartis, Beiersdorf, Pfizer, Biojamp, UCB, Celltrion Healthcare, Boehringer Ingelheim, and Amgen.

act on hs

We would like to warmly invite you to the webinar ‘Act on HS: tackling the unmet needs of people with hidradenitis suppurativa’, hosted by The Health Policy Partnership as part of the HS project.

The webinar is on 31 Jan, 17:00–18:00 CET and will focus on the impact of HS on people’s daily lives, in addition to the barriers people face to receiving best-practice care. A panel of speakers will share their experiences and discuss opportunities to improve care for people living with HS across the world. Following the webinar, we will be launching the international report.

You can register for the event here.

We are also pleased to share the HS video. This 5-minute video focuses on the lived experience of HS.

We would like to take this opportunity to thank you all for all the time and expertise that you have shared with us so far. We are excited to share these outputs publicly.


h s disease
Are you tired of feeling like you’re in the dark when it comes to treating your Hidradenitis Suppurativa? Let us shine the Spotlight on HS and help guide you towards the best treatment options.

The webinar took place on April 28-29, 2023, and can be listened to on-demand at your leisure. Join Stephanie Goldberg and Raed Alhusayen, Former President of Canadian HS Foundation, as they shed light on the complex conditions and provide insight on a range of medical and surgical treatments.

Don’t miss out on this opportunity to discover how to combine treatments for the best results. If you had registered for that meeting, it’s available to watch through the end of this year. Video link here.

 

Events & Supporters
novartis logo
celltrionhealthcare ci logo
pfizer logo
ucb logo
boehringeringelheim logo
beiersdorf logo
biojamp logo
amgen logo

Members

Executive Committee:
Helene Veillette – President (Quebec),  Lauren Lam – Vice-President (Alberta), Chris Keeling (Alberta) – Secretary/Treasurer
Board Members:
Ms. Pat Coutts (Ontario),  Ralph George (Ontario), Danielle Marcoux (Quebec), Simon Wong (British Columbia), Dr. Helene Veillette (Quebec), Rochelle Tonkin (Alberta), Raed Alhusayen (Ontario), Marni Wiseman (Manitoba), Jessica Asgarpour (Ontario)
Should you have any general health concerns or specific dermatological issues, we highly recommend that you first consult with your General Practitioner (GP) and obtain a referral to a dermatologist as needed. However, if you are specifically interested in participating in the INCYTE Clinical Research Study, please feel free to contact me directly for more information and guidance on this particular opportunity.