Helping Canadian Dermatologists better manage HS

a guide to living with hs provided by the canadian hidradenitis suppurativa foundation.

The goal of this book is to help individuals with hidradenitis suppurativa (HS) to learn more about HS and how to effectively manage this condition. This book is also designed for family members and friends of HS patients, as well as generalist healthcare practitioners who would like to increase their understanding of HS and the challenges associated with this condition.

the logo for the 99th cda annual conference featuring hidradénite suppurée.

Note: Deadline for application as of March 15, 2024

  • Communicate the latest HS management techniques

  • Create HS research opportunities and education for Canadian Dermatologists and mentorship for residents

  • Establish cross-specialty dialogue to improve HS patient outcomes

  • Collaborate with international HS foundations to optimize research, education and patient care
a close up of a pink and purple tissue, supporting the canadian hidradenitis suppurativa foundation.

What Is Hidradenitis Suppurativa (HS)?

Hidradenitis suppurativa (HS) is a painful, long-term skin condition that causes abscesses and scarring on the skin. The exact cause of hidradenitis suppurativa is unknown, but it occurs near hair follicles where there are sweat glands, usually around the groin, bottom, breasts and armpits.

THE PAIN IS TO THE CORE, TO THE POINT WHERE IT IS DEBILITATING. AS A RESULT, I LEARNT TO LANCE MY LESIONS.
WE REALLY NEED MORE DISEASE AWARENESS AND SUPPORT.

Joshua
A PERSON LIVING WITH HS, SHARED

act on hs

We would like to warmly invite you to the webinar ‘Act on HS: tackling the unmet needs of people with hidradenitis suppurativa’, hosted by The Health Policy Partnership as part of the HS project.

The webinar is on 31 Jan, 17:00–18:00 CET and will focus on the impact of HS on people’s daily lives, in addition to the barriers people face to receiving best-practice care. A panel of speakers will share their experiences and discuss opportunities to improve care for people living with HS across the world. Following the webinar, we will be launching the international report.

You can register for the event here.

We are also pleased to share the HS video. This 5-minute video focuses on the lived experience of HS.

We would like to take this opportunity to thank you all for all the time and expertise that you have shared with us so far. We are excited to share these outputs publicly.

h s disease
Are you tired of feeling like you’re in the dark when it comes to treating your Hidradenitis Suppurativa? Let us shine the Spotlight on HS and help guide you towards the best treatment options.

The webinar took place on April 28-29, 2023, and can be listened to on-demand at your leisure. Join Stephanie Goldberg and Raed Alhusayen, Former President of Canadian HS Foundation, as they shed light on the complex conditions and provide insight on a range of medical and surgical treatments.

Don’t miss out on this opportunity to discover how to combine treatments for the best results. If you had registered for that meeting, it’s available to watch through the end of this year. Video link here.

Latest Event

spotlighting the canadian hidradenitis suppurativa foundation's current treatment of hs.
Are you tired of feeling like you’re in the dark when it comes to treating your Hidradenitis Suppurativa? Let us shine the Spotlight on HS and help guide you towards the best treatment options. The webinar took place on April 28-29, 2023, and can be listened to on-demand at your leisure. Join Stephanie Goldberg and Raed Alhusayen, Former President of Canadian HS Foundation, as they shed light on the complex conditions and provide insight on a range of medical and surgical treatments. Don’t miss out on this opportunity to discover how to combine treatments for the best results. If you had registered for that meeting, it’s available to watch through the end of this year. Video link here.
Proud Supporters
novartis logo on a black background representing hidradénite suppurée.
healthcare celltron logo for hidradénite suppurée.
the logo for pfizer, featuring elements of hidradénite suppurée.
le logo ucb sur fond bleu présentant le traitement hidradénite suppurée.
le logo incyte, mettant en évidence le design épuré, se détache sur un fond noir.
bristol myers squibb logo for hidradénite suppurée.

Members

Executive Committee:

Susan Poelman – President (Alberta),  Marni Wiseman – Vice-President (Manitoba), Chris Keeling (Alberta) – Secretary/Treasurer

Board Members:

Ms. Pat Coutts (Ontario),  Ralph George (Ontario), Danielle Marcoux (Quebec), Elizabeth O’Brien (Quebec),  Simon Wong (British Columbia), Dr. Helene Veillette (Quebec), Rochelle Tonkin (Alberta), Raed Alhusayen (Ontario), Lauren Lam (Alberta), Hermenio Limo (Ontario)

Should you have any general health concerns or specific dermatological issues, we highly recommend that you first consult with your General Practitioner (GP) and obtain a referral to a dermatologist as needed. However, if you are specifically interested in participating in the INCYTE Clinical Research Study, please feel free to contact me directly for more information and guidance on this particular opportunity.