Because of the complicated nature of Hidradenitis Suppurativa and its impact on a patient’s daily life, a multidisciplinary approach to HS diagnosis and management is recommended. Thus, the right physician-patient pairing is crucial for treatment success. Remember, Hidradenitis Suppurativa specialists may include certified dermatologists, physician assistants, and nurse practitioners within the dermatology specialty.
It’s equally important to ensure the Hidradenitis Suppurativa specialists you consult have experience with HS. They should be able to help co-manage the condition to confirm a Hidradenitis Suppurativa diagnosis, identify the disease stage, and develop an effective treatment plan.
How to Find Hidradenitis Suppurativa Specialists
It is not easy to find Hidradenitis Suppurativa specialists. This skin condition causes painful lesions that secrete pus and blood. Unfortunately, not all dermatologists understand HS causes and treatment options, which means this condition is often misdiagnosed.
In most cases, HS patients seeking medical assistance for HS symptoms often encounter medical personnel who lack HS expertise, show sensitivity, or shame the patients for having this condition. This leads to delayed diagnosis, an extended period of suffering, and poor health outcomes for the patients.
While HS is incurable, it’s treatable. Yet patients with this skin condition experience many barriers to quality care. This results in excruciating pain, mental health problems, and poor quality of life. What’s more, physicians who don’t understand this condition attribute its symptoms to improper hygiene, which it’s not a cause of Hidradenitis Suppurativa.
Other physicians don’t explain to HS patients what they are battling, while other body-shame patients for being fat, attributing their body weight to HS symptoms. Do you know what this can do to a patient?
Why its Hard to find Hidradenitis Suppurativa Specialists
Finding Hidradenitis Suppurativa specialists can be an overwhelming experience for many patients. This rare and complex skin condition can be difficult to diagnose and manage, leading to great frustration for those living with it. Here are the reasons it is hard to find Hidradenitis Suppurativa specialists;
Lack of Hidradenitis Suppurativa Knowledge
Unfortunately, many healthcare providers and general practitioners have limited knowledge of Hidradenitis Suppurativa, which can lead to misdiagnosis or a lack of appropriate treatment options. This lack of understanding can result in a lack of specialized care, making it challenging for patients to find the help they need.
Poor Physician Communication
Communication between patients and healthcare providers is critical to the successful treatment and management of HS. Unfortunately, some healthcare providers are not well-equipped to handle difficult conversations about sensitive topics like HS. This can lead to poor communication and a lack of trust between patients and their healthcare providers, making it difficult for patients to find the support they need.
Challenges in Accessing Hidradenitis Suppurativa Specialists
Many patients have trouble accessing or getting referrals to healthcare Hidradenitis Suppurativa specialists and professionals in mental health. Underserved populations often experience challenges getting the professional care they need. With early access to HS healthcare, it will be easier to diagnose the earliest symptoms of HS and develop an effective treatment plan.
Distrust in the Healthcare Community
Some patients with HS have had negative experiences with healthcare providers who were not knowledgeable about the condition or were unable to provide effective treatment. This can result in distrust of the healthcare community, making it difficult for patients to find a provider they feel comfortable with and trust to manage their care.
Traumatic Hidradenitis Suppurativa Experience
Living with HS can be a traumatic experience for some patients, with patients often facing physical and emotional pain, stigma, and isolation. This can make it difficult for patients to trust healthcare providers or feel comfortable discussing their condition, further exacerbating the challenges they face in finding specialized care.
Despite these challenges, it is important for HS patients to remember that help is available and that they do not have to face this condition alone. By seeking support from a trusted healthcare provider, patients can receive the specialized care they need to manage their HS and improve their quality of life.
Tips for finding Reliable Hidradenitis Suppurativa Specialists
Here are tips to help patients find Hidradenitis Suppurativa specialists who are knowledgeable, compassionate, and equipped to offer the HS treatment and care services they need.
Research and Ask for Recommendations
An important step in finding a reliable specialist for HS is to do your research. Ask your primary care physician or a trusted healthcare provider for recommendations. You can also reach out to patient support groups or advocacy organizations for recommendations. Remember, HS is a complex skin condition that requires specialized care. Thus, finding Hidradenitis Suppurativa specialists is key to effective HS treatment and management.
Consider the Specialist’s Communication Style
Communication is key in managing HS, so it is important to find a specialist with whom you feel comfortable. Look for a physician who is approachable, empathetic, and willing to listen to your concerns. The specialist should also be willing to answer your questions and explain your HS diagnosis, treatment options, and potential outcomes.
You are not alone
Living with HS doesn’t mean you should stay isolated. Finding a good HS specialist is important in getting the care you need. Remember, good Hidradenitis Suppurativa specialists know about HS research, relevant drug development, and various clinical trials underway. Such experts can provide up-to-date information about your skin condition.
Also, the specialist can introduce you to support groups or online communities for those living with HS. This is a great opportunity to surround yourself with people who love you and understand your HS struggles. You will find and develop the meaning of quality of life even when living with HS.