Submitted by Rachel Dorey MS4
Word Count: 401
Hidradenitis Suppurativa (HS) is more than a physical condition; it’s a chronic, inflammatory skin disorder that deeply impacts mental health. Living with HS often brings about stress, anxiety, and depression, particularly as it tends to affect sensitive body areas and is prone to flaring up unexpectedly. The emotional effects are often compounded by physical pain, scarring, and frequent misdiagnosis of HS, which can lead to feelings of isolation and frustration. Research indicates that individuals with HS report a lower quality of life, comparable to that of patients with conditions such as diabetes and heart disease.
One reason for the mental health impact of HS is the social stigma attached to visible skin conditions. Many people with HS struggle with self-esteem and social avoidance, feeling self-conscious about visible scars or the potential for odor. Studies have found that the mental health burden of HS is comparable to other chronic, highly stigmatized conditions. This stigma often results in withdrawal from social activities, leading to increased feelings of loneliness and depression.
Additionally, the unpredictable nature of HS flares can cause significant stress. A sudden flare might lead to absences from work or social events, impacting a person’s quality of life and sometimes even their career or personal relationships. It is common for people with HS to feel misunderstood, as others may not realize the chronic pain and emotional impact associated with the condition. The unpredictability can also create a sense of anxiety about when the next flare-up might occur, making it challenging to relax or fully engage in everyday life.
Addressing HS involves a holistic approach that considers both physical and mental health. Support groups, mental health counseling, and open communication with healthcare providers can all be beneficial. A multidisciplinary approach, including dermatologists, mental health professionals, and nutritionists, can enhance treatment effectiveness. Treatments that target inflammation and pain are crucial, but so are self-care strategies, coping mechanisms, and mental health support. Cognitive-behavioral therapy (CBT) has shown promise in helping individuals manage the emotional aspects of chronic skin conditions.
If you or someone you know has HS, remember that you are not alone. The right care and a supportive community can make a significant difference. Connecting with others who share similar experiences can provide valuable emotional support and practical coping strategies, reinforcing the idea that while HS presents challenges, there are resources available to help navigate both the physical and mental health impacts of this condition.
References:
Johnston, L. A., & Poelman, S. M. (Eds.). (2021). A guide to hidradenitis suppurativa: Living with HS (2nd ed.). [Associate Editors: Rochelle Tonkin, Elizabeth O’Brien, Marc Bourcier, Raed Alhusayen].
Eberle, C. (2022). Hidradenitis suppurativa and PCOS: The connection you need to know. Healthline. Retrieved from https://www.healthline.com/health/hidradenitis-suppurativa/hidradenitis-suppurativa-and-pcos
Everyday Health. (2023). Stress management for hidradenitis suppurativa. Retrieved from https://www.everydayhealth.com/hidradenitis-suppurativa/stress-management/
Hidradenitis Suppurativa Foundation. (n.d.). Hidradenitis suppurativa. Retrieved from https://hsfoundation.ca/
